The Boy in the Moon

The Boy in the Moon

A Father's Journey to Understand His Extraordinary Son

Book - 2011
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Ian Brown's son, Walker, was born with a genetic mutation so rare that doctors call it an orphan syndrome: at most, three hundred people around the world live with it. At thirteen, Walker is still in diapers: he is globally delayed, he can't speak, and he has to wear cuffs on both arms so he won't constantly hit himself. He will require constant care for the rest of his life. The boy in the moon tells the story of one frail boy and the tiny constellation of people who love and care for him. From this intimate perspective, Ian Brown opens out a profound meditation on what life is worth, and what it means for all of us.
Publisher: New York : St. Martin's Press, 2011
Edition: 1st U.S. ed
ISBN: 9780312671839
0312671830
Branch Call Number: 616.042 B815b 2011
Characteristics: 293 p. ; 22 cm

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e
ealtreuter
May 04, 2013

Ian Brown shares an honest look at life with a profoundly disabled son, and in doing so addresses the question of what it means to live a meaningful life.

t
TooManyBooks
May 17, 2012

Well written description of the heartbreak of raising a profoundly disabled child. This particular family is Canadian; it would be interesting to have a comparison with the U.S. regarding availability of services for the child and the family. Worth reading.

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mpfickes
Aug 27, 2011

Canadian journalist Brown writes of his gnawing search to understand the ineffable, unknowable meaning of his genetically impaired young son’s life. More than a family memoir, more than the story of his son Walker’s enigmatic, wordless world, this is a cri de coeur that voices every parent’s grief at the inevitable thwarting of the dreams and expectations they hold for their children. Brown’s fearless, unsentimental prose exposes the myth of easy answers that genetic testing seems to promise, and demands scrutiny of commonly held definitions about what constitutes a life worth living.

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